NEWSLETTER N°2

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ERA-Net for Research Programmes on Rare Diseases
December 2012 NEWSLETTER N°2
     
   
     
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COMING NEXT
ON E-Rare WEBSITE
Photo E-Rare Coordination Unit
 
 
  Sophie KOUTOUZOV Coordinator
 
 
  Daria JULKOWSKA Project Manager
  contact@e-rare.eu
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Call for European Research Projects on rare Diseases Driven by Young Investigators

On the 7th of December 2011 E-Rare opens its 4th Joint Transnational Call for Research Projects on Rare Diseases. Nine countries from the European Research Area are joining this call: Austria, Belgium, France, Germany, Israel, The Netherlands, Poland, Portugal and Spain.

Please note that decision about the participation of the Turkish funding agency TUBITAK is still pending. The Call text will be updated as soon as their commitment to the call is confirmed.

The aim of the call is to provide young, independent investigators the opportuinity of building transnational collaborations in the field of rare disease research.

Projects shall involve a group of rare diseases or a single rare disease following the European definition i.e. a disease affecting not more that five in 10 000 persons in the European Community. Rare infectious diseases, rare cancers and rare adverse drug events in treatment of common diseases are excluded from the scope of this call.

The research proposals must cover at least one of the following areas, which are equal in relevance for this call:

- Collaborative research using patients databases and biobanks with clear potential for clinical/public health or socio-economic application

- Research on rare diseases including genetics, epigenetics and pathophysiological studies

- Research on development of applications for diagnosis and therapies for rare diseases

- Patient oriented research in the area of social and human sciences as well as health services research and health economy research in the field of rare diseases.

Interventional clinical trails are excluded from the scope of this call. 

Only transnational projects will be funded - each consortium submitting a proposal must involve a minimum of three and a maximum of six research groups from at least three different countries participating in the call (see the list above). Research groups from countries whose funding organizations are not partner in this E-rare-2 call may participate in projects if they are able to secure their own funding. The duration of the projects can be up to 3 years.

All prinicipal investigators, including the coordinator of the consortium must be Young Investigators - that is, have been awarded their PhD/MD or equivalent of doctoral degree, at least 2 and up to 10 years prior pre-proposal submission deadline. Extensions to this period may be allowed in case of eligible career breaks and must be properly documented.

All steps of the submission procedure will be managed by the Joint Call Secretariat (JCS) 2012.

There will be two-stage submission procedure for joint applications: pre-proposals that must be submitted no later than 31 January 2012, 12:00 CET and joint full proposals that will be accepted only from applicants explicitly invited by JCS to submit them. 

Researchers looking for partnerships can post their demands on E-Rare FORUM (see also the text below). 

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A helpful tool to find collaborations

If you are looking for partners in the field of rare diseases E-Rare provides you with several search and communication tools. One of them is the E-Rare Forum that was created to facilitate researchers the search of collaborations and information exchange.

This tool can be very useful to look for collaborations especially in the context of the announced Joint Transnational Call 2012 (JTC 2012) for Young Researchers. Since the deadline for JTC 2012 pre-proposal submission is 31 January 2012 we invite you to post your demands, comments as soon as possible.

To access and post messages on E-Rare Forum you will be first invited to subscribe. The posted topics, messages, comments will be validated before being diplayed on the Forum. This procedure is immediate and necessary to avoid spamming of the Forum and to secure the exchange of information. 

We hope that E-Rare Forum will help you to establish new partnerships and to develop your joint transnational research projects.

 
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