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Reports and Publications

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Welcome to the E-Rare Reports and Publications section. You will find here our Newsletters and an archive of our Workshop Reports, E-Rare Publications and Catalogs.

NEWSLETTERS AND REPORTS

Newsletters

NEWSLETTER N°1
E-Rare FLASH NEWS
NEWSLETTER N°2
E-Rare FLASH NEWS N°2

Reports

Workshop Report - "Bridging Patients and Researchers to Build the Future Agenda for Rare Disease Research in Europe", Brussels 2010
Workshop Report - "Towards a Work Plan for the Transnational Opening Programmes for Rotation and Mobility for Rare Diseases and Orphan Drugs", Hague 2009
Workshop Report - "Clinical Trials and Natural History of Rare Diseases", Madrid 2008

PUBLICATIONS AND CATALOGS

Survey on the Research Programmes for Rare Diseases, 2009-2010
Survey and Stategic Analysis on Themes and Needs for RD Funding, 2009
Strategy Paper for Next Generation Sequencing Platforms for Rare Diseases, 2010
E-Rare Catalog of Next Genration Sequencing Platforms, 2010
E-Rare Catalog of High-throughput Small Molecule Screening Platforms, 2010
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2011 - All Right Reserved - E-Rare
Toussaint Biger Realisation