|
Full partners:
Full partners are contracting members of the consortium, which participate in the whole decision and implementation process of E-Rare.
Belgium
|
F.R.S.-FNRS
Rue d’Egmont 5
B-1000 Brussels
Belgium
Representatives to E-Rare:
Dr. Miikka Vikkula
Associate Professor UCL
Dr. Michaela Ghassibe
Programme Manager |
|
| more about F.R.S.-FNRS |
|
France
|
GIS-Institut des Maladies Rares
102, rue Didot
F-75014 Paris
France
Representatives to E-Rare:
This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
Programme Coordinator
This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
Programme Manager |
|
| more about GIS |
|
|
ANR (Agence Nationale de la Recherche)
212, rue de Bercy
F-75012 Paris
France
Representatives to E-Rare:
Dr. Patrick Chaussepied
Head of Department
Dr. Véronique Briquet-Laugier
Programme Manager |
|
| more about ANR |
|
Germany
|
PT-DLR
Heinrich-Konen-Str. 1
D-53227 Bonn
Germany
Representatives to E-Rare:
Dr. Ralph Schuster
Programme Manager
Dr. Hubert Misslisch
Programme Manager
Dr. Christiane Steinmueller
Programme Manager
|
|
| more about PT-DLR |
|
|
BMBF
Hannoversche Str. 28-30
D-10115 Berlin
Germany
Representative to E-Rare:
Dr. Birgit Wetterauer
Scientific Officer
more about BMBF
|
|
|
|
Israel
|
CSO / MOH
2 Ben-Tabai str.
IL-91010 Jerusalem
Israel
Representatives to E-Rare:
Dr. Zelina Ben-Gershon
Senior Scientific Director
Dr. Orit Shmueli
Programme Manager |
|
| more about CSO |
|
Italy
|
ISS (Istituto Superiore di Sanità)
Viale Regina Elena, 299
I-00161 Rome
Italy
Representatives to E-Rare:
Dr. Domenica Taruscio
Head of the Italian National Center
for Rare Diseases
Dr. Paola Torreri
Programme Manager
|
 website
|
| more about ISS |
|
Spain
|
ISCIII-FIS/IIER
C/ Sinesio Delgado, 6
E-28029 Madrid
Spain
Representatives to E-Rare:
Dr. Rafael de Andrés Medina
Head of FIS
Dr. Manuel Posada de la Paz
Head of IIER |
|
| more about ISCIII-FIS/IIER |
|
The Netherlands
|
ZonMw
Laan van Nieuw Oost Indie 334
NL-2509 AE The Hague
The Netherlands
Representatives to E-Rare:
Erica Hackenitz, Msc.
Programme Manager
Dr. Sonja van Weely
Programme Manager
Jolanda Huizer, Msc.
Programme Manager
Dr. Edvard Beem
Co-director ZonMw
|
|
| more about ZonMw |
|
Turkey
|
TÜBITAK
Atatürk Bulvari 221, Kavaklidere
TR-06100 Ankara
Turkey
Representatives to E-Rare:
Ms. Melike Sevimli
Programme Manager
Dr. Banu Buruk
Programme Manager
|
|
| more about TÜBITAK |
|
Affiliated partners:
Affiliated partners have an observer status and may participate in E-Rare meetings but shall not have any voting rights.
Region of Lombardy (Italy)
Russian Federation
|
