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6th European Conference on Rare Diseases and Orphan Products, 23-25 May 2012, Brussels, Belgium

The 6th ECRD is an unique event gathering patients, policy makers, helathcare professionals, industry, researchers and academics in order to exchange information and ideas and to fight together against rarae diseases.

More than 100 speakers and professionals will cover the latest research, new treatment development, health and social care issues. The programme is divided into 7 conference themes including 30 informative sessions, panel discussions and multiple networking opportunities.

Discount is available to ALL for early registration and special low rates for patients or patients' representatives.

For more information, detailed programme, abstract submission and registration click HERE.

6th European Conference on Rare Diseases and Orphan Products, 23-25 May 2012, Brussels, Belgium
Diagnosis and Management of very rare anaemias: a challenge - 2-4 February 2012, Paris

European School of Haematology (ESH) and European Network for Rare and Congenital Anaemias (ENERCA) organize the european course entitled "Diagnosis and managment of very rare anaemias: a challange". The course will take place in Paris (France) the 3-4th of February 2012. This 2-days training will focus on harmonization of procedures for clinical and biological diagnosis as well as managment and follow-up of patients with very rare red cell disorders.

For more details, programme and subscription click HERE

Diagnosis and Management of very rare anaemias: a challenge - 2-4 February 2012, Paris
RARE 2011, 2-4 November 2011, Montpellier, France

The Eurobiomed Meetings on Rare Diseases

Rare 2011 event is organized by Eurobiomed and largely supported by local and national public and private partners.

The goal of this meeting is to gather representatives of public and private sectors and to encourage partnerships between key pleyers in research and industry in order to fight agains rare diseases in Europe.

 

The meeting will be composed of :

- two French-speaking days with multiple conferences and workshops dedicated to policy, clinical trials, orphan drugs, financing tools, etc.

-  and the European Day assigned to discussions on visibility of rare diseases in health information systems, the use of patients data and imrpovement of access to expertise and quality care for patients.

 

To obtain more information about RARE 2011 and to register click HERE

RARE 2011, 2-4 November 2011, Montpellier, France
International Congress on Research of Rare and Orphan Diseases, 29 February -2 March 2012, Basel, Switzerland

The Swiss Blackswan Foundation and Gebert Rüf Stiftung Foundation organize an international congress RE(ACT) 2012 dedicated to rare and orphan diseases.

The meeting will take place between 29th of February and 2nd of March 2012 in Basel, Switzerland.

It will focus on gene and cell therapy, stem cells, genomic disorders, diagnostics and therapeutic applications. General public, research community, industry and policy makers are invited to participate.

 

To obtain more information about the program and register click HERE.

 

You can also download the RE(ACT) 2012 poster and the flyer.

 

International Congress on Research of Rare and Orphan Diseases, 29 February -2 March 2012, Basel, Switzerland
Workshop on Advanced Therapy Medicines, 27 October 2011 Brighton, UK

The "Advanced Therapy Medicinal Products (ATMP): From Promise to Reality. Regulatory Path for Translation of Research in Commercial Medicinal Products" workshop is organized by the European Medicines Agency's Committee for Advanced Therapies (CAT). Translation of academic research into commercial products and understanding the regulatory pathways leading to authorization are a part of the programme. Numerous international speakers as well as members of EMA and FDA will share their experience in getting advanced-therapy medicines to market. You wil be able to get practical advice on the authorisation procedures directly from regulators.

For more information, full programme of the event and registration click HERE

Workshop on Advanced Therapy Medicines, 27 October 2011 Brighton, UK
First E-Rare-2 EAB Meeting, 1st June 2011 Lisbon

The first E-Rare-2 External Advisory Board meeting took place on the 1st of June 2011 in Lisbon, Portugal. The day focused mainly on the selection of the topic(s) of the future (2012) Joint Transnational "Focused" Call for Research Projects on Rare Diseases.

 

E-Rare forsees in its programme two "general" and two "focused" joint calls. The two “focused” joint calls will enable E-Rare-2 to address themes of research on rare diseases, which needs special attention and a focused approach. More specifically, these themes may include:

 

• Improving the access to technology research platforms such as high throughput sequencing and drug screening

• Facilitating the harmonization/merging of existing national biobanks and registry databases

• Enabling a start-up for research cooperation on ultra-rare diseases for which there is currently little, if any, on-going research.

• Supporting the cooperation of young investigators to facilitate early career development and training in rare disease research.

 

The final decision regarding the selection of the topic for the 1st Focused Call for Transnational Research Projects on Rare Diseases will be taken by the E-Rare-2 Network Steering Committee in September 2011.

 

First E-Rare-2 EAB Meeting, 1st June 2011 Lisbon
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